It’s just dawned on me that saying I am seeing the specialist and then not writing what he said is probably bad form.
I saw Dr Chak yesterday. That’s not his real name. It could be Chakrapani or Chakrabani or something completely different. But anyway, he is nice. He is the replacement Oncologist for Dr Deane who saw me once at the start of all this and then retired. I have seen several people, but never felt like I have an Oncologist as such. So Chakkers is it.
To be honest, not a lot to be said. He reduced my steroids from 2×4 a day to 2×3 a day. He said it was better to have 10 radiotherapies instead of the original planned 5 (which is a little shame…if it was only 5, I would be done tomorrow!). I am still taking the Tamoxifin and that will continue. I am also taking Lansaprazole to stop the stomach ulcer. Honestly, cancer or no cancer, stomach ulcer is THE most painful thing in the world and I am so glad it’s under control!
SJ has got all the troops on Pixie Patrol this week as I am not allowed to drive. I hate it. But I am getting used to it. And of course, I really appreciate everyone running round after me! Maybe being a lazy cow will suit me! Today or tomorrow I want to challenge myself to go out by myself. Since the dizziness started, it has scared me. But maybe not driving won’t seem so bad if I know I can walk and bus it. I don’t hate public transport, so perhaps it will be cool!
Anyway, there I go on a tangent again! Chakkers couldn’t tell me an awful lot more. I am keen to know prognosis…they started saying 1 to 5 years. He says it now more depends on the CT scan booked for next Tuesday and whether it’s off anywhere else. He thinks 18-24 months. It’s all numbers which mean a load of crap, really. I’ve been thinking about it and realistically, I’m gonna live longer than some people I know. No one knows what is around the corner. The most important thing is to make the best of everything and every day.
Yesterday was a lovely day – the sun shone, it was freezing, we got my car started and ended up on an inpromutu walk in Wareham Woods, followed by a nap. I am blessed with my life and the people in it 🙂